Links
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Other epilepsy-related links:
www.epilepsyclassroom.com
Created for parents and teachers to help provide advice, insight and tools that can help make handling epilepsy just another part of the school day.
www.epilepsy.cc
Centre for epilepsy and seizure education in British Columbia, Canada. Excellent videos and a lot of information about epilepsy.
www.jointepilepsycouncil.org.uk
Joint Epilepsy Council
www.epilepsyconnections.org.uk
Epilepsy Connections (cover Greater Glasgow & Clyde and Forth Valley Health Board areas)
www.epilepsywestlothian.co.uk
Epilepsy West Lothian (Support and advice to people with epilepsy in West Lothian)
www.scottishepilepsy.org
Scottish Epilepsy Initiative (research, education and training)
www.epilepsymcn.scot.nhs.uk
NHS Scotland Managed Clinical Network for Epilepsy
www.muirmaxwelltrust.com
Muir Maxwell Trust (Scottish paediatric epilepsy charity, support and free epilepsy alarms for children)
www.epilepsy.org.uk
Epilepsy Action (UK-wide epilepsy charity)
www.epilepsynse.org.uk
The National Society for Epilepsy
www.epilepsy.com
American epilepsy website, packed full of useful epilepsy information
www.ilae.org
International League against Epilepsy
www.ibe-epilepsy.org
International Bureau for Epilepsy
www.epilepsy.ie
Irish Epilepsy Association
www.epilepsy-wales.co.uk
Epilepsy Wales
www.quarriers.org.uk
Quarriers (charity providing a range of services in Scotland. They work for a wide range of client groups including people with epilepsy)
www.quarriers.org.uk/ourwork/epilepsycentre/index.php
National Epilepsy Assessment Centre for Scotland – information on Scotland’s only adult residential epilepsy assessment centre
www.epilepsyandpregnancy.co.uk
UK Pregnancy and Epilepsy Register – Freephone, information and research for pregnant women with epilepsy
www.matthewsfriends.org
Matthews Friends – useful information on Ketogenic Diet for children with epilepsy
www.epilepsyresearch.org.uk
Epilepsy Research UK
www.sudep.org
Epilepsy Bereaved: Information and support for anyone affected by SUDEP (Sudden Unexpected Death in Epilepsy)
www.erg.ion.ucl.ac.uk
University College London’s Epilepsy Imaging Group
www.elsevier.com
Epilepsy Research journal (where abstracts can be viewed free of charge)
www.ncype.org.uk
National Centre for Young People with Epilepsy (national charity for children and young people aged 5 to 25 with epilepsy and other neurological conditions)
www.davidlewis.org.uk
The David Lewis Centre – (largest UK provider of a range of medical, educational, residential and assessment services for people with complex epilepsy and other neurological conditions, including learning disability and challenging behaviour)
www.infantile-spasms.org Information on Infantile Spasms / West Syndrome, written by a parent of a child with the condition.
www.oacs-uk.co.uk
Organisation for Anti-Convulsant Syndromes (support group for those affected by Fetal Anti-Convulsant Syndrome (FACS))
Other health conditions links:
www.headway.org.uk
Headway – charity supporting people with a brain injury and those who care for them
www.alzscot.org
Alzheimer Scotland – includes 24 hour freephone dementia helpline
www.dementia.stir.ac.uk
The Dementia Services Development Centre
www.meningitis-trust.org
This charity provides professional services and support to everyone whose lives have been affected by meningitis for as long as they need it and raising awareness of the disease.
www.meningitis.org
Meningitis Research Foundation
www.chss.org.uk
Chest, Heart & Stroke Scotland (includes advice line)
www.heartstroketayside.org.uk
The Heart & Stroke Information Point website provides reliable, up to date information for patients and carers affected by heart disease and/or stroke conditions.
www.nas.org.uk
National Autistic Society
www.depressionalliance.org
Depression Alliance
www.mentalhealth.org.uk
Mental Health Foundation
www.samh.org.uk
SAMH – Scotland’s leading mental health charity
www.migraine.org.uk
Migraine Action
General health links:
www.youthhealthtalk.org
Interactive website about young people’s experiences of different health issues
www.scotlandpatients.com
Campaigning group for Scotland’s patients
www.vhscotland.org.uk
Scottish Voluntary Sector Health Network website
www.show.scot.nhs.uk
Scotland’s Health on the Web (NHS Scotland website)
www.healthscotland.com
Scotland’s health improvement agency website
www.isdscotland.org
Information Services Division (Scottish health statistics)
www.takelifeon.co.uk
Scotland’s healthy living website
Disability links:
www.cafamily.org.uk
Contact a Family website (For families with disabled children)
www.ckglasgow.org.uk
Common Knowledge provides online learning, accessible information and social networking for people with learning difficulties.
www.enable.org.uk
Enable Scotland website (Leading learning disability charity in Scotland)
www.capability-scotland.org.uk
Capability Scotland website (charity working with disabled people of all ages and their families and carers throughout Scotland)
www.fair-deal.org
Fair Deal provides support for adults with learning disabilities to live ordinary lives in their community.
www.cerebra.org.uk
Cerebra (charity helping to improve the lives of children with brain related conditions through researching, educating and directly supporting children and their carers)
www.update.org.uk
UPDATE - Scotland’s National Disability Information Service
Education links:
www.enquire.org.uk
Enquire website (the Scottish advice service for additional support for learning)
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